Moving – Up and Out

Yup, we are doing it. The #tinycondo has run it’s course and we are moving up to NW Indiana …

Mark is in a really bad way at this time and we have already had to delay our drive by a week to give him a chance to recover from his last hospital stay (1/4 to 1/8) … he has not eaten much in the past month … I would say his last substantial food intake was the day of the Ranch Margarita taco bar … he has been getting a hydration/iron/nutrient/electrolyte infusion but that still does not help

This past week, they put a stent in his esophagus. That helps with the swallowing but NOT with the stomach tumor that I swear, it sounds like pop rocks in there some days as its ulcerated and just bubbling away 🙁

So now, the POD shows up on Thursday (21st) and we plan to have it picked up and we will hit the road on Tuesday (26th). I will do the driving as he is not in any position to drive right now. The cats will chill in the back seat with the crates opened so they won’t feel trapped (we did that on the way back here last time and it was like night and day with them). I may have to stop every 2 to 3 hours to stretch and get him situated but if that’s what we have to do, so be it. Alternatively, I said IF he is still in a bad way, I can always put him on a plane and make arrangements for someone to pick him up and take him to the house … I have no qualms with driving by myself UNLESS there is snow! Been a while since driving in snow.

This is where I get my current, realtime weather report for NW Indiana!

The end goal for Indiana? Getting to University of Chicago the 2nd week of February to meet with our new fight team. We can’t do the travel to MD Anderson due to the deteriorated health and well, the doctor that we signed up with focuses 100% on esophageal cancer which is what we need since there isn’t a whole lot of options out there for this.

And that, my friends, is the latest and greatest from The Mark and Jan Show!

December 2020 Update

It’s been a long time since I’ve posted anything … I need to really change that, huh?

Life has just been challenging, to say the least!

I was in Indiana at the new house from beginning of August to November 10th. We drove both ways. I worked remotely that whole time, flying back for a week to do some hands on office stuff. The office survived.

A good day in September 2020

But … Marks situation has changed. A lot.

Last chemo treatment was October 19th where the local NWI oncologist said no more, too toxic and it’s not working. 2 day hospital stay a week a go for blood clots in both lungs and leg. Visit to MDAnderson (after receiving clearance to fly) and as suspected, the cancer has spread. Much more than we thought though. He has lost over 20 pounds in the past 3 weeks.

So now it’s trial time. He doesn’t qualify for any currently which really sucks and makes me ugly cry. Clots removed him from one. His blood counts and overall physical issues removed him from other.

So Monday, he is set up for a blood transfusion. I will be calling university of Chicago to see what they have and how we get in for review.

See, if we did go with the MDA trial after his blood work is cleared up, we would need to fly out for day 1 and 2, then again for day 8 and 9 and repeat that every two weeks, for the rest of his life. Mark flat out admitted that he didn’t think he would be well enough to travel like that. The cancer that has spread into his stomach is causing major stomach pain, non-stop and pretty much cripples him. Not to mention leg and back pain which effects his ability to walk any amount of distance (wheelchair at airport and hospital this last trip).

Feeling chill after endoscope at MDAnderson

So, as you can see, it’s bad.

We are getting ready to put the #tinycondo in the market and will sell it fully furnished which is a sweet deal for someone … makes me sad but needs to be done to eliminate additional stress.

We will drive to Indiana again in January after we (ahem, I) get most of our personal belongs packed up and ready to move.

Supposed to go to west coast of Florida to spend Christmas with the kids and grand baby BUT that may be cancelled I’d Mark still feels as bad as he does currently.

AND TO TOP EVERYTHING ELSE OFF … 2 of the 5 people in my office have tested positive for COVID in the past 48 hours. Glad I was only in the office and only had contact with ONE positive person … but the other 3 need to get re-tested and I need to get tested as well now.

That’s pretty much my life update. I need to start back to blogging, cooking and sharing as that is what brings me happiness. Cooking sucks now because Mark can only eat a few bites of something before stomach starts screaming so I hate to cook and torture him, let alone eat and enjoy in front of him 😐

I’ll try to keep you all updated (thank you for the random messages as well!) 🥰

Life Today

HI! For those of you still popping in and knocking on the door, we are still here. No need to peek through the windows!

It’s just life has taken a few twisty turns lately ….

Hubby skipped out on MD Anderson this last scan and had it done locally at the local hospital where he gets his infusions. We never “did” receive the full results as he hopped in the Charger the following day and drove BY HIMSELF to NW Indiana … took him 3 days due to being overly tired from the chemo but he enjoyed the drive. It makes me sad in that it is probably the last road trip he will make in that car, his dream car AND he made it by himself …

We closed on a cool little house with three acres of land, a creek and 3 car garage in NW Indiana.

We are starting a renovation project on the subject house … with a budget. A very tight budget, I might add. The replacement sliding glass doors are already hitting us HARD as we wanted to go with triple pane glass AND the blinds encased inside! Eek!

However, we did take a friends advice and listed the kitchen countertops and cabinets on Facebook Marketplace …. sold within 2 hours of listing for $700 (asking price) and they remove. Sweet!

I am currently up here now helping to make decisions on what to do AND to see my hubby since he’s been gone for 4 weeks! I’ve been flying solo at the #tinycondo and working like a crazy lady … still working remotely here in NWI when needed.

This is actually a little test as far as the work goes … I still “need” to work and bring income in for the time being as floating two households is NOT cheap by any means. It’s nice to NOT have any mortgages, that I will say, but still, you have monthly expenses regardless and with no other income besides mine (and Hubby’s disability which does NOT even cover the insurance payment), I continue to plug away.

So. A few of you have sent me emails inquiring on Hubby. He’s doing ok but tired of doing chemo every 2 weeks but as long as it appears to be working, fine, he’ll continue until he just can’t handle it anymore.

Still takes his blood thinner shots daily although he makes his own decisions when to take a break from them. Such as when he hit the back of his “good” hand and bled for quite a while … he opted to stop for a few days. He’s been prone to nosebleeds as well and will stop taking the shots when those come up frequently as well. I am not sure but pretty certain that he only takes one shot a day instead of two. I have decided to let HIM make the decision of what he feels is right at this point.

Buying the house was a bucket list item for Mark and he really needed a project to keep his mind busy. Yes, it’s a fairly expensive project but we will reap the benefits at the end of the day. Sometime, in the future, we will most likely sell the condo in Florida and move to Indiana permanently. That’s a few years down the road though, God willing.

It feels good to be back “home” as this is where we grew up and started our relationship all those years ago … I ask myself is this means we are coming full circle …

Thanks for stopping by … I do need to try and give a little more time here 😉

Looking forward to sharing with some of these GREAT Parties … go check them out!

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